Helpful tools

At the very beginning of this journey, I struggled a lot.  It truly felt as if there was no information, no doctor referral or recommendations for where to go or what to do next.  My oldest kiddo was diagnosed after my youngest because of this.  Perhaps it was his bubbly social personality that fooled the doctor, or perhaps the doctor was hesitant to say “autism” for whatever reason.  As I mentioned in previous posts, for my eldest, we were referred to an O.T. for evaluation and to Speech Therapy.  The O.T. we went to was terrible…really awful.  No information, no encouragement, no counciling or point of reference.  NO diagnostic information! We were more lost than ever with a our first label for our son, Sensory Processing Disorder.  What the heck???

“Low-muscle tone”

“Runs with a flat foot and is a bit awkward and slow”

“Sensative to certain textures/pressures”

etc…etc…

Nothing we did not already know.  So what did this MEAN???  Well, being in shock and bewildered, we left that office and never returned.  What do we all do when we need to know more about our kiddos in this day and age? GOOGLE.

So I was up all night, link after link of Sesory Processing Disorder and Occupational Therapies.  My husband was not sold on the diagnosis having never heard of it and unable to find anything legitimately stating it as an actual disorder.  (Which is because it is generally a symptom, or comorbid or another disorder, very rarely…if ever, a disorder on it’s own).

The more I read the more I realized I had to help my son, I had to get him used to things or find ways to help him cope.  I wanted to learn as much as I could to help him be happy again.  He had not been happy in a while and it was breaking my heart.

I took it upon myself to start doing some O.T. work with him myself.  Nothing fancy, I had no clue what I was doing, obviously, but something was better than sitting by and watching my boy suffer.

I bought books.  I read up, studied, GOOGLED some more and went to Amazon to find tools.  The first thing I bought, was an Amazon purchase.  Of all the things I have invested in over the years, these River Stones have been the most fun, most versatile and have never stopped therapeutically helping out my kiddos.

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(I’ve monetized my website ya’ll…it took me ages to figure it out as I’m no tech-genious, but I did it!  I get a small payment, but ultimately, I’m hoping my links to what has worked for me, helps others.  Promise not to link anything that I have not used or found useful!).

River Stones were our go-to during the rainy winter we had that first year of our journey.  We splayed them out throughout the living room, or down the hall, by the sofas…we played a game my sister and I made up as kids called ‘Aligator’ and tried not to fall into the river and get eaten!  The object of this ‘game’ was for my kiddo to stay on the stones, which un-beknownst to him, was exercising his core and working on his balance and body awareness, coordination etc.  If he fell off the ‘aligator’ (me) would chase him round the house until he either got tickle-attacked or he got safely back onto a River Stone.  Endless fun!!

Lava is also quite fun to play with these.  We also made the rainbow and walked up into the clouds one day, we crossed ravines, hopped to islands, played catch me (carefully) with his newly walking baby brother, going quickly in circles on the stones.

These were the first tool I bought and here we are still using them today, almost 4 years later!  His friends come over and love them as well, they provide a great base for imaginative play for all kids.

 

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Author: Vic.E.

I am a Mom. I am a Caregiver. I am an Advocate. I get paid in unconditional love, in progress and by the amazing support of my very hard-working husband who is the greatest Dad to our two boys. Our first child came in 2011. He was orange haired and big, 9.5lbs…yikes! He was a butter ball. Just perfect and delicious! His eyes came out green like Momma’s and his skin tone white with freckles like Dad’s. He will be taller than both of us, over 6’ according to the trajectory of his health chart! He has his great grandfathers build. He is smart, has an amazing memory, is super creative, and is sensitive, so empathetic. He is my first born and just perfect. He is also diagnosed with Autism-mild, ADHD, Anxiety, dyslexia, possible dysgraphia and possible other things…really, just all things to help him get the supports he needs to thrive in life. At his core, he is who he is. Full of silly laughter, big smiles, a warm heart, intense loyalty, a strong justice gene, and a fundamental belief in the good. My second and last child, was born in 2013. The boys are a year and a half apart. He was born looking like an old man. Poor kid was induced early, for fear of another large infant and my ignorance I had a say. He had the umbilical chord wrapped around him and was blue as can be. He recovered fine though, no need for oxygen or anything. But he was checked on a lot to be sure. His skin would be tan like mine, but he won’t go outside much in the daylight. His eyes are closer to Dad’s and his Gran’s (my husband’s mom)…hazel green/dark blue. He has moles rather than freckles, but other than the should be darker skin and moles, he looks just like his Dad. A little mini-me of my husband. Same sandy dark blond hair, same darker eyes, same features. His body is more like my husbands as well. However, he is due to grow over 6’ and will most likely be taller than his big brother! He had a level 4 tongue tie. Something I thought would stretch and break on it’s own. I was a naturalist momma. Keep those sharp objects away from my babies!!! He was able to nurse just fine, and we got to take him home. He was diagnosed first, his symptoms were classic…development fine and then massive regression. He was around a year old when we noticed. The doctor at my other son’s check up saw it, and referred us to an “evaluation” which I did not understand at the time. Anyhow. He is Severe-Autism, ADHD, non-verbal. Although, 10 years on, I don’t like that term for him. He chats all the time, mostly scripts, mostly needs and wants. Rarely anything novel comes out, but when it does it is brief, but magical!!! He progresses every day. My life went from social to isolation pretty quick. Other’s noticed the differences with our kids, my youngest was unsafe to take out for years. So, here are our stories. Jumbled up, in reflection, looking forward, retrospective. I try to write about our progress, our hopes and show the raw side of living a life in a house of neurodivergence. You are not alone, we are many. It’s time we showed ourselves to the world and stopped hiding our kiddos away. They deserve to be celebrated, included, loved.

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